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Public Policy


Public Policy Committee Report, September 2011 Read More

Legislative Efforts to improve the quality of care for people with Sickle Cell living in Canada

Bill 165 An Act to Establish Sickle Cell and Thalassemia Care Ontario and to proclaim Sickle Cell and Thalassemia Awareness Day

Bill 165 did not become law, but was a laudable effort by MPP Mike Cole who fought to make a difference in patients' lives. The SCAO is grateful to MPP Cole and his team for working on bill 165.

Bill C-221An Act respecting a Comprehensive National Strategy for Sickle Cell Disease and Thalassemic Disorders

Bill C-221 did not become law, but was a great effort by MP Kristy Duncan. The SCAO is grateful to Mrs. Duncan and her team for working on bill C-221.

Requesting your child's Sickle Cell carrier status

Your child can be perfectly healthy, and still have one copy of the Sickle Cell gene, which makes her / him a carrier. One needs two copies of the Sickle Cell gene to suffer from the disease. While carriers do not suffer from Sickle Cell disease, they can pass on the Sickle Cell gene to their children. If two parents pass on their Sickle Cell gene to their child, he / she will suffer from Sickle Cell Ontario. Unfortunately the law in Ontario does not provide for systematic disclosure of carrier status. However, you can request your child Sickle Cell carrier status by using the file attached below.
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Zacharie Liman-Tinguiri,
Dec 1, 2011 7:36 PM